Welcome!

DISCLAIMER: The purpose of this blog is for me to share my experience with my health problems, as I found comfort in the experience of others when I first started to research what I was going through. No post or information offered on this blog is meant to take the place of proper medical advice. If you have questions about your health and what measures to take, I suggest arming yourself with knowledge. That means researching the matter thoroughly so as to be better able to discuss it with your doctor and understand what is happening and how to proceed.

 

This blog covers my experience with Hyperparathyroidism and, subsequently, Kidney Stones from the struggle with being properly diagnosed, diagnosis, and then several surgeries and follow-ups. If you’re looking for specific information, I suggest starting with My Story / Timeline, which explains the experience starting in 2007 and highlights related blog posts. I’ll update this page as new information becomes available.

You should also check out the Resources page for websites I found helpful during the process, and grain-free dieting which helped me during my recovery process.

If you have any additional questions or feel like chatting, just comment! I’m happy to answer as I can.

Kayleigh

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2 thoughts on “Welcome!

  1. Nicole says:

    I’m dealing with the parathyroid issue now. Well, I have been for years but like you the doctors are taking FOREVER to decide treatment. I have been doing what you did, arming myself with knowledge. I can’t believe how many people I am hearing from that have had their doctors allow them to go years with suffering through symptoms (headaches, mind fog, bone pain, etc) whilst thinking those AREN’T surgery worthy symptoms? It’s mind boggling.
    I have had ultrasounds x 3 (showing hypoechoic area). I’ve had bloodtests showing high calcium and dangerously low Vit D, A SPECT that showed not ONE hypoechoic like before but now it’s 3 different glands that have it. and today I go in for a 4D/CT because all that was still not enough?! I don’t get it and don’t know what my plan of action is next. I just want my life back. I want to be headache free, I want the bone pain to go away, I want to not be a cranky SOB….

    I’m glad I came upon your blog though. It’s been a tremendous help even if just to know others relate. I hope you are doing well and on the road to recovery.

    • verifiedkayo says:

      Hi Nicole,

      I’m so sorry to hear about the troubles with your doctors. It truly is frustrating. My advice: fight for what you want. If they don’t listen, find someone who does. That’s what it took for me — a constant search for someone that would listen. Once you start getting bone pain, that is a BIG deal and it shouldn’t simply be ignored! I’ve heard from so many people the same story as yours and it makes me sad. How much pain do you really need to be in before they stop being scared to do something about it?

      I’m glad it’s been a help. Life isn’t 100% better as I still have quite a few kidney stones to deal with even after a couple surgeries for that, but it’s definitely better than it was with hyperparathyroidism.

      Please feel free to ask any questions you want, or leave a message if you just need someone to chat with who has been there.

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